THROUGH CHALLENGE and Lyme Disease
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THROUGH CHALLENGE and Lyme Disease

LYME LITERATE DOCTORS

A LYME LITTERATE PROBLEM

 With all of the challenges right now between LLMD's and the NON LLMD communities I felt the need to republish this article which I have submitted to Shelley at Public Heath Alert.
   I have been talking with a Reader about Lyme Literacy, Lyme specialists, LLMD'S, Lyme Sufferers, oncologist. There seems to be a misunderstanding in the NON-lyme circles that LLMD's consider themselves specialists. That is the furthest from the truth as that could be. LLMD's are always learning lyme.

HMB TESTING PROTOCOLS

   I was chatting recently with a lyme sufferer about testing and found that the person may have had inadequate testing for Heavy Medal Burden. BUT recieved CDC protocol testing.  The same with HMB. Mainstream is not keeping up. Patient said they had tested for HMB and found it to be fine. This problem is very important too eliminate when looking for lyme among other things. This puzzles me a bit because the hospital that did the test does not recognize advanced or late stage lyme.

In response to Dr. Susser

A century old controversy about the nature of communicable disease: microbe vs. host resistance. Does the infectious agent itself cause us to feel sick or do we succumb to illness because our immune system has been damaged?
This is an especially important question when considering Chronic Fatigue and Lyme Disease.

     Hello folks,
I have given this question some thought and hope that you can hang with me as I try to simplify this remark so that even my Lyme damaged brain can understand it.

Testing & Diagnosis

  FromBuz Susser, A knowledgeable Lymer. From La, Cal. and Penna. boy. Buz makes a very good point about Lyme test and diagnosis. His FB post reads.
  I had a patient who had her tick bite twenty-some years ago, with a bull’s eye rash and everything, and she’s probably been to fifteen doctors, none of whom would believe she has Lyme. She has Lyme tests from labs that don’t do well with Lyme and they came back equivocal or negative, so she didn’t have Lyme by any standard for all these years.

LYME UPDATE

Hello, 3/2/2014
I am writing this letter as a fairly knowledgeable Lyme sufferer who has been fighting Lyme Disease for years. I believe I understand it's many forms of attack on the body through my own experiences and research. I was writing a letter to an old friend of mine this morning. She is a medical technologist. I was telling her that I am thinking maybe we could talk and discuss a couple of tests that are being used by the Lyme literate community. (Then I felt, this letter needs to be seen by some powers that be and so here it is.
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