Alica Cashman shared the following important information:
"Columbia Brain Depository will take your brain. I made arrangements with my family to contact Columbia upon my death and send them my medical records ASAP. http://columbia-lyme.org/research/columbia_specimen_bank.html"
--- some info from their website ---
To further characterize the extent of involvement and damage by Borrelia burgdorferi in humans, brain, spinal cord, and other tissues from people who have had Lyme disease at some time in their life are collected for current and future investigation at the NYS Psychiatric Institute. People with a history of well-documented Lyme disease, which must include a positive Lyme blood test, should contact us at . It is most important that your next of kin or other individual who will be responsible for arrangements after your death be made aware of your wishes, provided with the Columbia Lyme Center contact information, and be informed that they should contact us immediately after your death. Putting aside in a safe place your medical history and laboratory tests is very important as this information is necessary to review before we can conduct the post-mortem investigation.
In the event that death has just occurred or is imminent, time is of the essence. If this is the case, please call this emergency number 646-549-8880.
Thank you for considering this most invaluable donation to further scientific understanding of the neuropathologic effects of Lyme disease. Please let others know about this,Jill