LETS EXPLORE HISTORY
I often find myself talking about how this monster (Lyme) and I have found challenge in an age old disease called Borelia Burgdorferi (Lyme Disease). It is not long before I am telling of my knowledge of Lyme and talking about how it was discovered in Lyme, Connecticut. Then I would mention that there is some suspicion that perhaps ALS (AKA- Lou Gherigs Disease) could have been actually Lyme Disease.
I have heard about how Nazi's may have experimented on the east coast of America and possibly had lost a bacteria or two while testing. But this story took a turn for me in my thoughts as I was thinking through a very interesting TV show that I had watched the other night. And then it clicked. This thought, I came to realize, probably won't change the future of this dreadful disease, BUT, this story could very well rewrite history.
It all starts back in 1805 when Thomas Jefferson had this great vision and curiosity in knowing what is between the United States and the pacific ocean. He enlisted a couple of guys and in time they were off to explore the west. These guys went all the way to the ocean and decided to stay the winter, then return to President Jefferson and the capital the following spring. All that time, as communications were slow, Jefferson would wonder if they had ever made it or even survived their journey. The next thing in one of these explorers challenges was being appointed territorial Governor of the new Missouri Territory and the many challenges that came with it.
It was a few short years later that this gentleman found himself overwhelmed with stress (as it is called today) and could not fulfill his duties as Governor. He found himself in great pain and some people thought he had lost his mind. I and so many of my fellow lyme sufferers can relate to the very smart, courageous, strong individual that he must have been. This story began to strike me as a mirror into my own life as I crumbled with Lyme Disease (as I am now diagnosed with and had suffered with for 28 yrs before a diagnosis!)This gentleman, who was ridiculed and was lonely, took his own life later as I am sure the pain and mind could no longer bare his failing spirit. I am sure he was suffering the same path as myself. As many as nine out of 10 to 20 misdiagnosed Lyme sufferers that there are today, could seek comfort in finding “that” diagnosis that gives solace in knowing.
Today if we use a Lyme disease test 1. with appropriate testing 2. as many Doctors are not doing 3. or are not trained to do, and are not using the testing as a tool rather than a diagnosis, we can get this monster under control. It may be too late for many late stage sufferers as is the case in many new discoveries of any new medical discovery. But it will give future early stage diagnosed lyme sufferers hope.
As the lyme community makes very slow progress, there will be many misdiagnosed sufferers with many auto immune diseases like MS, Alzheimer, Aids, Fibromialgia, Anxiety, Depression, Chronic Pain including chronic fatigue( I might add, having experienced the pain, it is far worse than chronic).
By the way, the gentleman I have admired through my years of appreciating history is Meriwether Lewis, an explorer of Lewis and Clark Fame. We tend to wonder why people give up on life as he did when he took his own. But having experienced his journey (thru a tv program) can help me understand why somebody with his strength, spirit, and courage could be reduced to a mere existence. I am sure Lyme Disease and auto immune disorders have been around for a long time. (I feel it is an epidemic/pandemic of these tic-borne diseases.)
I am wondering if with the climate warming, population overload, that disease takes over. Can we, as an over populated planet, survive. Nobody seems to be listening!
A Solute to Meriwether Lewis
Author/David R Thomas