Here is a helpful share from a knowledgable Lyme teacher.
When do people use common sense?
There are times in the Lyme community when people become so accustomed to so many symptoms. Pains will come and go within days. Brain fog and neuropathy come and go within weeks and so many unusual things are experienced.
A lot of folks in Lyme groups will discuss all these things with each other, but when is it time to think that a symptom is ER worthy? Especially when folks in hospitals are so Lyme friendly.
I think what it comes down to is this:
1. If you can’t breathe
2. If your heart and chest hurt beyond reason
3. If one of your limbs turn purple
4. If pain and numbness of limbs occur without cause
5. If you black out for no reason
6. If you have sudden vision changes
7. If for no reason you cannot walk
8. Seizures for no reason
9. Severe headache with numbness following it
10. Localized severe swelling or limb or joints get hard
Bottom line is if anything occurs that is surprising and different from the symptoms you discuss with your LLMD or LLND then it is time to go to the ER.
It is hard to imagine going to an ER if you have had bad experiences with Doctors, but if you amend your files to reflect the type of treatment you want, (check with a lawyer that is Lyme aware to help with this).
Once a person has Lyme disease, it too easy to think every symptom is sprouting from the Lyme. It may be hard to recall the simpler times when these symptoms were ER worthy. It may be worthwhile to ask your LLMD or LLND what are ER worthy symptoms and a plan for such things so you are prepared for emergencies.
Well, I am off to another adventure. Hope all of your adventures are good!