From Buz Susser, A knowledgeable Lymer. From La, Cal. and Penna. boy. Buz makes a very good point about Lyme test and diagnosis. His FB post reads.
I had a patient who had her tick bite twenty-some years ago, with a bull’s eye rash and everything, and she’s probably been to fifteen doctors, none of whom would believe she has Lyme. She has Lyme tests from labs that don’t do well with Lyme and they came back equivocal or negative, so she didn’t have Lyme by any standard for all these years.
Yet, she has all the classic signs of Lyme—myalgia, arthralgia, brain fog, classical rash in New York, and her mother recognized it. She has Lyme clinically.
Just from her clinical history, there is a ninety-nine percent chance she has Lyme, no matter what the test shows. She’s been sick all these years. https://www.facebook.com/buz.susser/about------
My reply is: Great point Doc. A lot of people out there don't realize or can't believe you can be clinically diagnosed "WITH LYME / "WITH A NEGATIVE TEST". This is why an LLMD is so important. A reader of mine and friend has had the test once. Not sure which test. Early or I-Genex (late). I know she has Lyme. Doctor started treating her for Lyme. And Her LLMD has just sent her in for an I-Genex test. By the way. Another good sign she has Lyme. She is feeling better and making progress on Lyme meds.