Lyme Diagnosis and future 61613
Hello All, I am here to talk about the Testing, diagnosing, dealing with and the so called curing of lyme disease and it's co-infections. I have been thinking greatly on this and have felt that IN MY OWN EXPERIENCE I could have had much better care if these few steps were in place while going through my 20+ year ordeal with and diagnosing of my lyme. Back when I started having these issues often with mild infections (sinus, bladder, lower back pain, neck pain, mental issues such as depression, anxiety, gloom and doom feeling of dieing, and many others ailments) and fatigue and overall laziness (malaise). I have discovered that when a doctor tests with the old Alisa test and gets a positive test. I should have been put on a med. regime right there as my history would have hinted somethings afoul. If I was better in a few days, I could have been kept on these meds for at least a couple of months. Instead it was protocol to backup the test with western blot and if that comes back negative or below the acceptable numbers for lyme, you did not have lyme. It is now fair to say in my mind that when reading this test that like pregnancy, you got it or you don't. Much of the time when a lyme test shows below the acceptable numbers for lyme. It just happens to be a low day. When I would call the doctor and tell him the problem, it would be days sometimes before I could get to see him and by that time , that attack of lyme has run it's coarse and will fail the test for a diagnosis. I feel the best way to deal with the suspicion of lyme is look at the history and the hints in the patients past. Such as if a patient is ill with an infection and is better in a few days and then a month or so later is down again with something else or even the same thing. This person needs to be evaluated for an auto immune problem. And that today in many cases fall in the lyme and co-infection category. I know for years I was told I am getting older and my hard work and play as a farmer was catching up to me. But at 57 years old, as I look back, I new that was not the case. I could almost sense there was something eating at me from the inside out. I express these feelings to my doctor for years and it just didn't catch in his mind. I am hoping that the mainstream medicine community will soon except the I-GENEX TESTING PROGRAM for Lyme and it's co-infections. It is very important to express co-infections because you can have one and not the other. It is a $200.00 test and must be sent to California with in a 24 hour period, But there are groups out there to help with cost if your insurance will not help as most will not. That help can be found through www.ahopeforlyme.org or your local or state lyme assoc. Most of the time you can have all of these diseases and really need a lyme literate doctor to work through getting over or even functional once again. But often there can just be one or two diseases that can be dealt with. As for the curing of lyme. If you can get at it early, I see good results from mainstream medicine that you can get over it. But the co-infections can still be there lurking and eventually show it's ugly head once again as something else. I feel the only way we will be able to get ahead of this epidemic is to have lyme clinics staffed with lyme literate personal that have and understanding of lyme and tick borne diseases. I don't feel we have that yet. Mainstream medicine is not ready to except that it has missed the boat while there is an epidemic eating up whole families with lyme and it's co-infections or children losing precious years because of political wt. and bureaucracy.
Beware if you are showing signs of ailments and your doctor is hinting that you may have this or that and could be talking anything such as some of the following list.
Lyme Disease is often misdiagnosed as:
You need a Lyme literate doctor or profeshional to see you. Call your local or state or national lyme assoc and they will talk with you. If you can't find them get in touch with somebody who can find them. That is all for now and hope this helps some. Any questions please don't be afraid to ask.
David R Thomas – author: “My Successes Through Challenge and Adversity” and Advanced Lyme