There was an article from a FB friend and fellow lymee “Lyme Disease: The more you know” that I felt compelled to relate to. She was hoping to be able to find help with getting IV antibiotics for her cognitive brain problems related to lyme. My lyme Literate Doctor asked me to try something different first and it has appeared to work.
I can understand your frustration with cognitive problems. I was also a mess when I found a lyme specialist that I needed my wife by my side all the time so that I could find my way back from the restroom, much less find my way to the doctors. Which happened to be 5 hrs. away. But when I got there he evaluated me and put me on clarithrmycin for a # of months working my way up to 1000mg a day. Mycins cross the brain barrier as many don't know. I began to experience improvement in about three weeks or less and it took me about a year to get back to myself as I am now. Since then I have written a short book and published that experience and also wrote and published another experience that I was fortunate to have with my Son Noah through the spirit and message from a Great Grandpa down to my son Noah. It was a very long road and I have lost some very wonderful friends in my life for their frustration through ignorance of Lyme has made it's memory indelible. But I have been blessed with the new friends and family that I have made for myself. You can to and if you need to talk feel free to call or email me. www.throughchallenge.com
“Lyme Disease: The more you know” - David, that's very good to hear. About what percent of *before lyme normal* do you feel now?
I would say and I disgust this with my wife. I have recovered about 80% maybe more of my before lyme diagnosis brain of 15 to 20%. I can now again trust myself to help with the grandkids and my family knows that I may never get back to much better. But I am very happy that I am able to use my brain for helping others get to good help. Your 4th stage lyme as I think you have as. Needs attention by a lyme master and unfortunately there are not enough of them. I know a couple of people who have done the IV and had good results but ended in bankruptcy. I think this was as good for me although the lyme devastated my heart and other functions. But I am functional and able to manage myself quite well again as for not having to need my wife holding my hand. When I was diagnosed, My doctor thought from looking and talking about my history that I had Lyme over 28 years before and that was 06, Good luck with your search for treatment. I can also be reached at firstname.lastname@example.org .
David R Thomas