Journey Through Challenge - LETTERS P.2 - Sayre, PA
        THROUGH CHALLENGE - A Journey Through Lyme Disease
 
 LETTERS TO OUR LEADERS
 
  FUTURE OF LYME
Date: Mon, 25 Nov 2013


  This is an update in my journey through LYME and my opinion of what is going to be needed to combat the epidemic. I would like to get this published without costing me anything for I am financially ruined by lyme and caring for my lyme ill wife.
Future of Lyme
Hello All, I am here to talk about the Testing, diagnosing, dealing with and the so called curing of lyme disease and it's co-infections. I have been thinking greatly on this Lyme epidemic issue and felt that IN MY OWN EXPERIENCE I could have had much better care if these few steps were in place while going through my 20+ year ordeal with and diagnosing of my lyme. Back when I started having these issues often with mild infections (sinus, bladder, lower back pain, neck pain, mental issues such as depression, anxiety, gloom and doom feeling of dying, and many others ailments) and fatigue and overall laziness (malaise). I have discovered that when a doctor tests with the old Alisa test and gets a positive test. I should have been put on a med regime right there as my history would have hinted somethings afoul. If I was better in a few days I could have been kept on these meds for at least a couple of months. Instead it was protocol to backup the test with western blot and if that comes back negative or below the acceptable numbers for lyme, you did not have lyme. It is now fair to say in my mind that when reading this test in my opinion like pregnancy, you got it or you don't. Much of the time when a lyme test shows below the acceptable numbers for lyme. It just happens to be a low day. When I would call the doctor and tell him the problem, it would be days sometimes before I could get to see him and by that time , that attack of lyme has run it's coarse and will fail the test for a diagnosis. I feel the best way to deal with the suspicion of lyme is look at the history and the hints in the patients past.  Such as if a patient is ill with an infection and is better in a few days and then a month or so later is down again with something else or even the same thing. This person needs to be evaluated for an auto immune problem. And that today in many cases fall in the lyme and co-infection category. I know for years I was told I am getting older and my hard work and play as a farmer was catching up to me. But at 57 years old, as I look back, I new that was not the case. I could almost sense there was something eating at me from the inside out.  I express these feelings to my doctor for years and it just didn't catch in his mind. I am hoping that the mainstream medicine community will soon except the I-GENEX TESTING PROGRAM for Lyme and it's co-infections. It is very important to express co-infections because you can have one and not the other. It is a $290.00 test and must be received in a California lab with in a 24 hour period. There are groups out there that may be able to help with cost if your insurance will not help as most will not. That help can be found through National lyme Assoc. or you might try seeking help through your local or state lyme assoc. Most of the time you can have any one or all of these co-infection along with or without the Lyme disease. You really need a lyme literate doctor to work through getting through your Lyme journey or even functional once again. Often there can just be one or two diseases that can be dealt with. As for the curing of lyme. If you can get at it early, I am not seeing good results from mainstream medicine that you can get over it.  Unless you are in the care of a lyme literate doctor and you are on an auto-immune boosting supplement program. The co-infections can still be there lurking and eventually show it's ugly head once again as something else. I feel the only way we will be able to get ahead of this epidemic is to have lyme clinics staffed with lyme literate personal that have an understanding of lyme and tick borne diseases. I don't feel we have that yet. Mainstream medicine is not ready to except that it has missed the boat. While there is an epidemic eating up whole families with lyme and it's co-infections or children losing precious years because of political/Pharma wt. and bureaucracy. Beware if you have been chasing signs of ailments and your doctor is hinting that you may have this or that and could be talking anything such as some of the following list. You could be suffering a Depleted autoimmune system created by Lyme disease. This does not take anything away from your mainstream doctor. The mainstream doctor probably is as accurate as can be without the experience and knowledge of handling Lyme disease. It is unfortunate that a good and productive Lyme Literate doctor at this time is one that has Lyme themselves or is watching his/her child, mother, sister, father,wife suffer with Lyme.  Lyme disease is often misdiagnosed as: Alzheimer's disease, Irritable bowel syndrome, Multiple Sclerosis, Parkinson's disease, ALS (Lou Gehrig disease), Attention Deficit Disorder, ADD/ADHD, Obsessive Compulsive Disorder, Fibromialgia/Chronic, Fatigue, Crones/ulcerative Colitis, Malignant Lymphoma, Chronic, Thyroid/adrenal problems, Schizophrenia, Autoimmune diseases, Scleroderma, CREST syndrome, Anxiety/depression/bipolar, insomnia, Degenerative disc disease, Gerd (acid reflux), Lupus, Rheumatoid Arthritis, Vertigo, Migraines, plus many more.
Thank you for your time,David R Thomas Lyme Disease advocate author of:My Successes Through Challenge And Adversity/Advanced Lyme Disease
www.throughchallenge.com


   Author: David R Thomas  JOURNEY THROUGH CHALLENGE - An advanced lyme story  Kindle edition now available http://www.amazon.com/dp/B00OF18DD6
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