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A LYME LITTERATE PROBLEM

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THROUGH CHALLENGE and Lyme Disease

Ecceptance and Lyme

Hello my Lymee friends and readers,
 My Journey through challenge has taken me pretty much the same track as so many others in the lyme world. Every once in a while there is a doctor who refers one of his patients to an LLMD. That is something that was unheard of in 2005. As for understanding and diagnosis, I have found many people who come to me and wish to see somebody about a possible lyme infection only to be blown off later because their doctor has chosen yet another brilliant diagnosis to blame all their troubles to. It is ignorance and refusal to except the possibility that their may be something causing these overblown issues outside these little blocks of knowledge that doctors receive at the big U. It never fails for those who I am thinking need to see an LLMD will eventually see an LLMD or die. In the end it is the patients choice. The concept that there can be lyme related issues outside that block of knowledge magnifying many correct diagnosis is also a big issue. In the end Lyme disease, coinfections, correct or incorrect diagnosis's. I would not go to a foot doctor for an autoimmune issue no more than I would go to a lyme doctor for a tooth ache. The big familiar here is non acceptance in the medical community. But trails are being forged for lyme sufferers everyday.

Organ Donors

    I use to be a Donor. But now I am a Lyme recoverer. Many people are getting sick organs. Until we can get a knowledgeable medical community. Babesia, Bartonella, Erlichia, and many other coinfections will be transferred. But still believe perhaps it is a great program if tested properly. I believe with an igenex Western blot test to determine about Lyme is or is not present. A good chance there are no coinfections. But not always the case. They say the organs are clean but the medical community will not use tests that work and only allow tests proven and protocoled by IDSA and CDC and high paid legislators. And now the government is being pressured into outlawing the very tests that can save us. IN MY OPINION.

Senate Lyme bill#177

In regards to Senate bill #177 relating to lyme. Signed by Gov. Corbett. Pa.
  I am hoping this will be a step forward for the tick borne disease sufferers, Lyme Illiterate Medical community, and education for our children in schools, home, and parents. This Lyme affects all of us. I hope there will be enough sense to include in education the Lyme Disease assoc. and Ilads athttp://www.ilads.orgto educate from the field as well as from your bought and paid for government laboratories who have missed the bout on this tragic error in judgment.

Finally fed up.

 I am a lyme advocate and was just chatting with a probable lyme sufferer on the street that I have been talking with. Finely her oncologists told after asking if she could have lyme disease. His words were , you have something but we are not sure what it is. We are trained for recognizing lyme disease and you don't have lyme disease. Perhaps she don't have his trained form of lyme disease but I am quite sure this poor lady who has been run through 15 plus doctors at some of the finest hospitals has a Tick borne infection and probably more than one.

A LYME LITTERATE PROBLEM

 With all of the challenges right now between LLMD's and the NON LLMD communities I felt the need to republish this article which I have submitted to Shelley at Public Heath Alert.
   I have been talking with a Reader about Lyme Literacy, Lyme specialists, LLMD'S, Lyme Sufferers, oncologist. There seems to be a misunderstanding in the NON-lyme circles that LLMD's consider themselves specialists. That is the furthest from the truth as that could be. LLMD's are always learning lyme.

Babesia and Paniculitis

Linda's liniment treatments are seeming to be not so many because I am not reminded to give her the Liniment massage. I still feel getting the lyme under control is important. But we have had real good luck eliminating the inflammation and nodules with the liniment. I should also add she suffered before her Lyme Disease diagnosis with failing kidneys. Her kidneys now are replenishing themselves and all tests say they are normal. I did not mention where I had put this theory together. I was researching sub-dermal nodules and found a match with Paniculitis. My doctor laughed at me. He never heard of it. But I found that Paniculitis is suspected to come from different things and one of the things was Babesia. If you know Tick borne diseases. You know Babesia is a co-infection to Lyme disease. Meaning you can get co-infections along with your lyme infection. Babesia is a Malaria cousin and a parasite. I believe in the theory that if you don't get rid of the parasite first you may find it harder to get rid of other tick borne illnesses. It is suspected that Paniculitis will attack the pancreas and the liver and kidneys. Possibly be tide to type 2 diabetes. Linda is getting that under control better now that we are getting rid of toxins and the Babesia. Babesia in turn depletes the kidneys ability to filter toxins through the urine. These toxins build up in the sub dermal fat membrane under the skin and they are like prickly needles against the nerve endings. I thank my lymee friend Blyme lymee for striking yet another very good article for my blog at throughchallenge.

LYME PAIN

   Is your pain in your muscles or joints or both. Neck, back, fore arms, lower legs. My wife had this for years along with toxic nodules under the skin. Finally found something other than Epsom salt baths that works well. I went too the tractor supply and got me a bottle of Absorbine liniment. I massage her aching areas for about a week sometimes twice a day. She got through it and her nodules that we have been trying to shrink for years has shrunk 70 percent. Her pain level at this moment is tolerable and I still give her a liniment massage twice a week.

TAKING TO THE WOODS

  I recently caught a reply on one of my friends FB post about Nora who is fiercely afraid of going out into tick areas for her husband had gotten sick from a tick bite. I hope her experience and husband recover. It struck an article and it follows.
  Good morning Nora, My wife and I have been married 15 yrs next month. We are late stage/advanced Lymee's and advocates. We are also great lovers of the out doors. We took to the woods yesterday about 4:00 and enjoyed a great afternoon with some quiet as we sat and waited for the elusive buck to appear.

SISTERS

  I received a post on my Facebook by a young fellow lyme sufferer and thought it would a wonderful share on my website.
 
 This week my sister asked me, "why do you want to put a notice about Lyme awareness in your mailroom?" This saddens me.
Last week she told me she understood my Lyme Disease
 
  Maybe she knows your sick and has trouble communicating it. Maybe she can't see why a lymee chooses too talk and share a devastating experience with others. Again communication.

HMB TESTING PROTOCOLS

   I was chatting recently with a lyme sufferer about testing and found that the person may have had inadequate testing for Heavy Medal Burden. BUT recieved CDC protocol testing.  The same with HMB. Mainstream is not keeping up. Patient said they had tested for HMB and found it to be fine. This problem is very important too eliminate when looking for lyme among other things. This puzzles me a bit because the hospital that did the test does not recognize advanced or late stage lyme.
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