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GULF WAR SYNDROME?? or Tick related


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I was asked recently what is the correct test for Lyme testing. This is why it is important to seek an LLMD trained by ILADS (International Lyme and Associated Diseases Society) To look at the patient. My reply was:
That depends on the patient, how long they have been infected, How much they have been treated after the tick bite. But in most peoples cases when I have a chance to talk with them, They need a test from I-genex. This is an out of house Lab in California that basically specializes in Lyme and infectious diseases and coinfections related too lyme. There are a couple other labs but this is my favorite at this time. The in house blood labs in most of our top hospitals will not recognize lyme. They can not wrap their head around something that they think can not exist. The Lab company such as Quest or many other labs including the best hospitals I have been to will not make a diagnosis anymore without a positive test from the in house Contracted lab. This does not mean you will get a positive test. It means you should be looked at by a LLMD (Lyme Literate Medical Doctor) who usually has lyme or a very sad case of lyme at home with a family member who has been through the mainstream search for answers and found that Mainstream medicine is slow in getting the issue that lyme is a different bear than regular medicine is equipped for. Lyme is rewriting auto-immune science. As for Testing: Elisa test that most doctor (NON-LLMD's) will use as their first defense is about 35% accurate which makes it useless. Then the western Blot that doctors use for early infection is some what helpful to a point or before a person is treated for anything with antibiotics. But after a certain time even that test is not practical and then you need a western blot test from I-genex that is different from the early stage lyme test and about 99% accurate in my book. I have only heard of one negative test and then that child went on to what is called the CD57 test. The child was then found positive and is doing well with treatment. I could go on but as you can see. You can not wrap yourself around just a positive test all the time. Hope this helps.

GULF WAR SYNDROME?? or Tick related

  Gulf War Veterans' Medically Unexplained Illnesses - Public ...
View shared post Feb 13, 2014 - VA refers to these illnesses as "chronic multisymptom illness" and "undiagnosed illnesses." We prefer not to use the term “Gulf War Syndrome” ...www.publichealth.va.gov
  I am reading a book by a well verse Lyme researcher/MD who wrote about Mycoplasma. Dr.


  I have been a very busy guy with trying to get my book organized and ready to reprint, added too and properly edited. But then comes a time to take a break from the business and take a call to go talk to somebody or just get away from it all. This brings me to an experience that I had recently and it left us feeling still useful in our fight for good health.
  I was called to a home yesterday to talk about Lyme. We met 2 wonderful young people, one 78 yrs. and the other 80 I believe. Both tested positive and starting meds. and unfamiliar with the lyme life of a lyme sufferer. Linda and I meet all ages with this terrible disease. These people have been diagnosed previously with many of the ageing ailments of the elderly and just talking with them and there enthusiasm for life. You could tell they were two kids thrown out of there element. Many had them crazy or senile, wearing down from old age but I seen two people seeking quality of life for the remaining days , months, or yrs. they have left. They have clearly been through hell chasing diagnosis's and now they have a direction and goal. My wife and I felt good leaving there with an invite back.


 I am beginning to see the benefits of building our depleted auto-immune systems back up. We have been dumping so much chemicals, metals and all into our bodies. I don't think there is a cure so much as a balance of nature that has been taken away by the crutch of the last 55 years. "Antibiotics" . Antibiotics has taken away the autoimmune systems stress and challenges to stay in tip top form. Unfortunately I feel we need those like Dr. Sussers expertise in ancient medicine too help right this ship if it is not too late.


 When treating Lyme there is really no stone hard cure or treatment for Lyme and its co-infections. And I am not a doctor but I do read the 2013 edition of LYME DISEASE and associated diseases "THE BASICS" . I am also a long time Lyme disease recoverer. There has been question of what can be used to treat Lyme and it's co-infections. I can only talk about what I read and what I have been prescribed and what has worked for me. Everybody is different and there are more mixes for different groups of infections.

In response to Dr. Susser

A century old controversy about the nature of communicable disease: microbe vs. host resistance. Does the infectious agent itself cause us to feel sick or do we succumb to illness because our immune system has been damaged?
This is an especially important question when considering Chronic Fatigue and Lyme Disease.

     Hello folks,
I have given this question some thought and hope that you can hang with me as I try to simplify this remark so that even my Lyme damaged brain can understand it.

Starving Lyme.

   Recently I had an interesting and informative conversation with a couple of readers. I asked for permission to publish this on my blog.

David R Thomas·LYME DISEASE ADVOCATEatDavid R Thomas
Basically as an advanced/ late stage Lyme sufferer. The Lyme community is learning and trying different things. When I was diagnosed and test +, I started antibiotics and continued for 7 years until new approaches were introduced to me. I started starving the Lyme from my body about a year ago a now I am trying to build the auto-immune system which in turn is helping my nervous system.

Testing & Diagnosis

  FromBuz Susser, A knowledgeable Lymer. From La, Cal. and Penna. boy. Buz makes a very good point about Lyme test and diagnosis. His FB post reads.
  I had a patient who had her tick bite twenty-some years ago, with a bull’s eye rash and everything, and she’s probably been to fifteen doctors, none of whom would believe she has Lyme. She has Lyme tests from labs that don’t do well with Lyme and they came back equivocal or negative, so she didn’t have Lyme by any standard for all these years.


 Today I am finding myself talking about something that when I was a young man back on the farm. I couldn't dig, burn or kill this plant fast enough. Now I look at it as a pain reliever. My wife suffered greatly before her lyme diagnosis for years and back when she was diagnosed clinically and couldn't afford the help. We were forced too research a lot of info out there and before to long we were looking for answers for her very 10+ pain nodules in the fatty tissue under the skin. We would search around and one Dr. Chiropractor suggested pressure point therapy. I believe it may have helped in that we were doing something but in the long run , I believe we made more nodules. I began researching and finally found something that fit her problem. In the meantime a doctor suggested she have some tests and found that she may possibly be suffering a fatty liver. That is not a good thing for as the liver turn to fat, it looses it's filtration capabilities. As I was looking into Linda's painful nodules. I found an article on paniculitis. This was before she receive help for her lyme. While researching this Paniculitis, which basically I was laughed at when mentioning it to the doctor. This was being mentioned as possibly a Babesiosis related issue. In Linda's case a Lyme disease and co-infection related issue. It all boiled down to her liver was failing to filter the toxins from the body. The article mentioned that Babesia attacks the pancreas which triggers her Type 2 diabetes and then moves for the kidneys and then liver. The toxin that the liver can not filter goes into the body somehow, someplace. In her case, it shows up as pin point nodules under the skin. Very very painful. With Epsom salt baths would reduce some of the pain. But we could never get rid of it all and diet, supplements, and pain killers just wasn't enough too curb the pain. Then as my Linda was watching television she notice a supplement advertisement for Milk Thistle. She said she would like to try it. So she tried it and it is about 4 weeks now and her nodules are shrinking and her pain is lesser than before she began taking it. There is a ways to go yet as we have been treating her Lyme and co-infections. We are hopeful that we are on to something. Milk Thistle is not a pain reliever. Milk thistle helps too replenish the livers capability too filter out toxins. Who would have thought.


   Electro-magnetic fields or north / south polarity. What the heck is he talking about now. I have stumbled onto something that I have been watching for thirty years. Sound manipulation of the sensory system in the body. Does that sound stimulating in it's self or what. This started back when I was a young man or old boy when I would be out in the pasture and I screwed up when I peed on the electric fence. If there was a sore bone, tight muscle or overall fatigue. It was all gone in a flash of a second for days.
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